Wednesday, June 30, 2010

I'm a surviv-ah!

On June 24, Joel and I walked with friends and family in the American Heart Association's Start! Wall Street Run and Heart Walk to help raise awareness against heart disease and stroke.

We had some walkers with us in the Financial District along with team members in: IL, Vancouver, Kalamazoo, NJ, Upper East and West Sides, and Dr. Oz received an honorary team member tee.  

The front of the tee was a shout out to Dr. Oz, who did my surgery.  The tinman (Wizard of Oz, get it?) asking if you've "got heart". 
The back of the tee said:
'operor panton per totus of vestri pectus'
(Do everything with all of your heart.  Colossians 3.23)


Some pics (I will post more later):

I'm a survivor!  
Those of us wearing red caps during the event were all survivors and showed that we are "Fighting Back"!! 


Our walking team in the financial district (thanks guys!)

Some of our remote team members:
          
Dad and Mama Jan in IL                                                                 Mom in IL              

          

Shannon in Kalamazoo, MI                                 Peter and Cheryl in NJ

           Amanda and Laura in NYC                                   Laura again, my favorite little lady
                                                        


We also had many family and friends support us (via The American Heart Association) financially, which was a huge blessing.  This money helps to improve patient care, advocate for better health, reach out, educate, and raise awareness.

Heart Disease and stroke are the number 1 and number 3 killers in America and I'm certain each of us know someone affected by one or both.  I am very passionate about helping raise awareness, especially to alert young people that these issues are not just for your grandparents.  We are all affected.

It is hard to believe it has been two years since we started on this journey.  Amazing how the path of life drastically changes and your passions take a major shift as well.  I was unaware of so much those short two years ago and I will continue to share my story as long as I know it can help save lives.  

Wednesday, June 16, 2010

Open Heart Demo & Memories of the Big Day

Joel and I went to an open heart demo at the hospital on June 8 and it was a-ma-zing!
so cool and SO informative.
How often do you go into open heart surgery (or any surgery for that matter), are knocked out for 8+ hours and have a clear idea of what is happening to your body during that time?
....yeah, never.

There were a few things I remember leading up to the surgery:
-waking up stinking early the day of and taking a cab to the hospital
-waiting in one room and then being shifted to another room where Dad and Joel came with me.  In the second waiting room I put on my robe, went to the bathroom (yeah, as if that was needed as just moments later they put in the catheter, ha!), took out my contacts, and waited to be called into the O.R.
-a nurse then escorted me down the hall and into the O.R.  I couldn't see a thing without my glasses or contacts, so I remember hanging onto his elbow
-we walked into the O.R. and the nurses and docs had me lay down on the bed
-they spoke to me for awhile telling me a bit about what would happen during the surgery and then told me they were going to put the anesthesia mask on.  They continued to ask me questions about basically nothing, then... I. was. out.

After that...I have not a clue what happened.

So, Joel and I went to this demo to find out what the heck they did to me!
This was certainly not for those with a queasy stomach.

The doctor giving the demo showed us a video of my awesome doc in the O.R. and some basics of what he does along with shots of the heart/lung bypass machine. (a pic) wow.

He also passed around: 
--a chest tube (also: here and here) which is "used to remove fluid from the space between the lungs and the wall of the chest.  The tube is placed between the ribs and into the space between the inner and outer lining of the lungs".
--a pace maker
--the wire attached to your heart during and after surgery. I don't remember the name of it, (AICD? Automatic Implantable Cardioverter Defibrillator?) but it helps maintain the electrical current of the heart...similar use as a pace maker, but it's temporary
--and some other tools used (note the one in the top center, thats how they crank and keep ya open! wo.)
It was amazing to see and touch these items.  (I did not have a pace maker put in, but it was still pretty neat to see what it was.)

He also told us some of the steps that happened after we are knocked out:
-they wash our whole body with a special anti-bacterial soap
-cover us up with the fancy blue sheets (one which had a special window just to the heart)
-cut open our skin, pry open the ribs, do the wee little op, and sew us back up!

Now, my surgery was a minimally invasive open heart surgery and not your traditional crack open the breast bone surgery. So instead of being on my back during the procedure, the docs had to roll me on my side and stretch the ribs open instead of just opening and closing the breast bone.

As the ribs shift back into place it is certainly pretty painful, but the recovery time for minimally invasive is shorter. With this, you can return to your normal life and activities pretty quickly.
There is less also scarring with minimal invasive,
I have an incision only about 4 inches long under my right breast:
(this pic was taken just 4 weeks after surgery, now, just over a year later... you can barely even see any of the scarring! woot! Vitamin E oil helps the scarring as well)

Needless to say this demo was incredible and very informative. Joel and I were the youngest ones in the room, but it was wonderful to be in a room full of supporters and folks who had been through the same thing and to learn more  about what has happened to my body. Incredible.

Tuesday, June 15, 2010

One Year & kicking strong...


ONE YEAR...


June 15, 2009: Open Heart Surgery


June 15, 2010: thanking God for all of His blessings and protection through crazy times.  I'm onto bigger and better things...and oh so grateful I'm still alive. wow.  PTL